Please find Resources Below.
Important Facts:
End-of-Life Care in Texas
Key findings from the Last Acts Analysis on the status of end-of-life care in Texas revealed:
Key findings from the Last Acts Analysis on the status of end-of-life care in Texas revealed:
- Less than 1/4 of Texans die at home, although most say they would prefer to die at home in familiar and comfortable surroundings
- The State's Pain Management policies as currently structured may actually create barriers to good pain management
- Less than 1/3 of Texas hospitals (31%) report offering pain management programs.
- Just 28% of people over the age of 65 who die in Texas utilize hospice care and the median length of hospice care for those who do use this form of care is only 25 days.
FORMS:
- Directive to Physicians (living will)
- Medical Power of Attorney
- Forms and Resources for Advance Care Planning (ACP) - from Baylor Health
- Medical Orders for Scope of Treatment (MOST)
- Prepare for your Care, Advance Directive
Some Helpful Resources for Starting Conversations and Completing Documents
■ http://www.mydirectives.com/ - An electronic on-line approach to Advanced Care Planning
■ The National Hospice and Palliative Care Organization (NHPCO)
■ Preparing for End of Life Care
■ Texas Department of Aging and Disability Services (DADS) resources
■ Aging with Dignity
■ National Institutes of Health has information ranging from healthy aging to preparing for end of life.
■ The Conversation Project: This is an online resource with stories of others who have had conversations with their families. Starter kit is available to download with suggestions of how to start the conversation and subjects to cover. You can find them at: http://theconversationproject.org/
■ National Healthcare Decisions Day: The sixth annual NHDD is on April 16th and is a program that was started to inspire, educate and empower the public and providers about the importance of advance care planning. They have a helpful website: http://www.nhdd.org/
■ Respecting Choices: This is an approach to advance healthcare planning which was started in La Crosse, Wisconsin. They have many resource materials available, one of which is in your packet. CQEC (Coalition for Quality End-of-Life Care) is a local 501c3 organization which is one of the sponsors of today's seminar. They offer Respecting Choices training for facilitators who can help people have meaningful discussions about these decisions. For more information on Respecting Choices you can go to http://respectingchoices.org/
■ Dozens of Clergy hope to get people Talking about Death - article is here
■ Pitfalls for Proxies - article here.
■ What you should know about elder facilities and end-of-life care - article here
■ One Day Your Mind May Fade. At Least You’ll Have a Plan. - article here.
■ Advanced Care Planning Resources website.
■ Resources for the Jewish Community:
■ The National Hospice and Palliative Care Organization (NHPCO)
■ Preparing for End of Life Care
■ Texas Department of Aging and Disability Services (DADS) resources
■ Aging with Dignity
■ National Institutes of Health has information ranging from healthy aging to preparing for end of life.
■ The Conversation Project: This is an online resource with stories of others who have had conversations with their families. Starter kit is available to download with suggestions of how to start the conversation and subjects to cover. You can find them at: http://theconversationproject.org/
■ National Healthcare Decisions Day: The sixth annual NHDD is on April 16th and is a program that was started to inspire, educate and empower the public and providers about the importance of advance care planning. They have a helpful website: http://www.nhdd.org/
■ Respecting Choices: This is an approach to advance healthcare planning which was started in La Crosse, Wisconsin. They have many resource materials available, one of which is in your packet. CQEC (Coalition for Quality End-of-Life Care) is a local 501c3 organization which is one of the sponsors of today's seminar. They offer Respecting Choices training for facilitators who can help people have meaningful discussions about these decisions. For more information on Respecting Choices you can go to http://respectingchoices.org/
■ Dozens of Clergy hope to get people Talking about Death - article is here
■ Pitfalls for Proxies - article here.
■ What you should know about elder facilities and end-of-life care - article here
■ One Day Your Mind May Fade. At Least You’ll Have a Plan. - article here.
■ Advanced Care Planning Resources website.
■ Resources for the Jewish Community:
- Sage Voices:
- http://www.jtsa.edu/sage-voices: A diverse group of rabbis and religious leaders speak about end of life issues and how they integrate Jewish tradition into their own teaching and care for others.
- A Time to Talk:
- A Time to Act:
- resource guide about the documents, here.
Other websites recommended by the members of the Tarrant County Academy of Medicine Ethics Consortium:
■ Coalition for Quality End-of-Life Care: This is a local 501c3 organization which endeavors to provide opportunities for individuals to combine their energy, talents, and values for community improvement and enrichment in the management of end of life concerns. Events such as the one today will be posted on their home page. http://www.coalitionqec.org/
■ Coalition for Quality End-of-Life Care: This is a local 501c3 organization which endeavors to provide opportunities for individuals to combine their energy, talents, and values for community improvement and enrichment in the management of end of life concerns. Events such as the one today will be posted on their home page. http://www.coalitionqec.org/
Grief Resources:
Caregiver Resources:
■ Family Caregivers Online
■ Caring Connections
■ Caregiving Is Hard Enough. Isolation Can Make It Unbearable.
■ Caring Connections
■ Caregiving Is Hard Enough. Isolation Can Make It Unbearable.
Caregiver Resource Podcasts:
